Share Your Story

We are committed to empowering the patient community with meaningful support. Sharing your story of successful management or treatment of Tarlov cysts can give hope to others, especially those who are recently diagnosed.

To submit your story, fill out the form below and attach at least one high-resolution photo. By completing this form, you give TCDF permission to use, adapt, modify, publish and distribute this content in our marketing materials and to all media.

• TCDF staff or volunteers may contact you to discuss your story further.
• TCDF reserves all and final editorial privileges, including the right to choose not to use submissions which may be edited at the discretion of the editorial staff.
• TCDF will never sell or disclose your personal contact information without prior consent.

This form is not HIPAA-compliant. Please do not submit protected health information (PHI), including medical diagnoses, treatment history, or other health details, through this form.
 

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Name(Required)

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Name as you’d like it to appear on your published story(Required)

Social media handle, if you would like us to tag you when sharing your story

How has your life been impacted by Tarlov cysts?

What has given you hope on your Tarlov cyst journey?

Share your advice - how can others support someone living with Tarlov cysts?

Your story in your own words

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Max. file size: 64 MB.

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