Resources for Living with TCD
Empowerment through clear, evidence-based information and meaningful support.
FAQs
Frequently asked questions about Tarlov cyst disease.
Terminology
A glossary of medical terms to help you understand the language of Tarlov cysts.
Assemble Your Team
Pulling together a team of healthcare professionals can help you navigate living with Tarlov cyst disease, especially if surgery is not an immediate or long-term option for you.
Educating your provider about TCD
How to advocate for yourself when your provider is not familiar with Tarlov cysts.
Letter to Family and Friends
Our founder originally wrote a version of this letter with the hope of bettering her loved ones' understanding of her reality with Tarlov cyst disease. If you’re having trouble explaining your situation to loved ones, you may find the following language helpful. Feel free to use as-is or to make it your own.
Applying for Social Security Disability
Condition-specific guidance for building and presenting a claim. Note that this is specific to the United States.
- Documenting Functional Limits for Disability Claims (PDF download)
- Appealing a Disability Denial (PDF download)