Find a Healthcare Professional
The Foundation cannot recommend whom you should see or guarantee any outcome. We provide this list so that you might more easily investigate possible treatment options.

Providers in the U.S.

Providers outside the U.S.
Providers in the U.S.

Willing to provide consultations to other providers

Accepts insurance

Provides seconds opinions/review
Feigenbaum, Frank, MD, FAANS, FACS, OSS
Neurosurgeon
Feigenbaum Neurosurgery P.A.
Dallas, Texas
Offers a "no patient cost" phone consult for most US residents.
Schrot, Rudolph J., MD, MAS, FAANS
Neurosurgeon
Sutter Medical Group
Sacrameto, California
Contact Mindy Watkins for consultation
Henderson, Fraser C. Sr. M.D.
Neurosurgeon
The Metropolitan Neurosurgery Group, LLC
Upper Marlboro, Maryland
Providers outside the U.S.

Willing to provide consultations to other providers

Accepts insurance

Provides seconds opinions/review
Zollner, Georges, M.D.
Interventional Neuroradiologist
The Université Louis Pasteur, Department of Neuroradiology
Strasbourg, France
Marcettini, Paolo, M.D.
Neurologist with specialty in Pain Management
dell’ Ospedale San Raffaele di Milano
Milan, Italy
Arantes, Aluizio, M.D.
Neurosurgeon
The Faculty of Medicine of the Federal University of Minas Gerais
Belo Horizonte, Brazil