Hyperlinks
http://rarediseases.info.nih.gov/GARD/
www.spineuniverse.com (A resource for back pain and spinal cord information)
www.NINDS.com (National Institute for Neurological Disorders and Strokes)
www.rarediseases.org (National Organization for Rare Disorders (NORD) website)
www.spinalcord.org ( National Spinal Cord Injury Association)
www.nlm.nih.gov (National Library of Medicine/National Institutes of Health)
www.theacpa.org (American Chronic Pain Association)
www.theaword.org ( Arachnoiditis website)
www.medicalacupuncture.org (American Academy of Medical Acupuncture)
http://www.ssa.gov/ (Social Security Administration)
http://oshpd.ca.gov/HID/Products/Hospitals/FairPricing/index.html (CA State laws regarding charity care and discount payment programs)
http://www.qualitycheck.org/. (The Joint Commission on Accreditation of Healthcare Organizations) Quality check for healthcare facilities
http://www.usdoj.gov/crt/ada/adahom1.htm (American Disabilities Act website)
http://www.patientadvocate.org/resources.php (A website for solving insurance and healthcare access problems)
Support Groups/Forums
Below is a list of available Tarlov cyst patient forums. The Tarlov Cyst Disease Foundation provides this list as a potential resource for patients . The Foundation has no affiliation with, nor does it endorse any specific one of the groups on this list.
United States
http://health.groups.yahoo.com/group/straight_talk_tarlovcysts/
http://health.groups.yahoo.com/group/tarlovcystsurvival
http://www.righthealth.com/Health/tarlov_cysts_cervical/-m-1-s
http://brain.hastypastry.net/forums/showthread.php?t=22
http://health.groups.yahoo.com/group/tarlovsupport
http://health.groups.yahoo.com/group/tarlovtalk
Europe
cistiditarlov@yahoogroups.com Italy (in Italian)
quistestarlov@yahoogroups.com Spain (in Spanish)
TarlovFrance@yahoogroups.com France (in French)
http://torbieletarlova.populus.org/rub/8 Poland (in Polish)