December 2009 Meeting at the National Institutes of Health (NIH) Office of Rare Disease Research (ORDR)
Tuesday, December 8th, 2009
2009 began with the implementation of the Foundation’s Tarlov research grant contract and ended with the incredible opportunity to provide a meeting at the NIH Office of Rare Disease Research in Washington, DC. This meeting was an extraordinary collaboration and communication between researchers and scientists, staff at the NIH National Institute of Neurological Disorders & Strokes (NINDS), Office or Rare Disease Research (ORDR), physicians who are knowledgeable about and have expertise in treating Tarlov cysts in the U.S., the recipient of the Foundation’s Tarlov cyst research grant, Anne Louise Oaklander, M.D., PhD., and Tarlov Cyst Disease Foundation leadership. The results of this meeting provided new beginnings in 2010 for future partnerships in Tarlov cyst research and education. As more plans are finalized, we look forward to updating you throughout this year and the next about exciting opportunities made possible by this meeting.