See Advocacy Spotlight Interview /Focus on the Tarlov Cyst Disease Foundation
Tuesday, October 21st, 2014
NORD Rare Diseases Breakthrough Summit Meeting
October 21-22, 2014
http://www.raredr.com/articles/Tarlov-Cyst-Disease-Foundation
Reta Honey Hiers, RNC President/Executive Director Tarlov Cyst Disease Foundation was in attendance at this important event as a Tarlov cyst patient advocate and as a Poster Presenter.
NORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multistakeholder event of its kind – Powered by over 30 years of passion and serving the patients and families affected by rare diseases with new channels of answers, advocacy, advancements in research and access to life-transforming treatments. The 2014 Breakthrough Summit is concentrated with innovative content and convenes the top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to address the progress of rare disease diagnosis, genomics, drug development, patient engagement, product approvals, FDA oversight and market accessibility to orphan products.
Expecting an unprecedented turnout, the NORD 2014 Breakthrough Summit is crafted with multiple workshops and focused tracks of content to ensure high quality learning, networking and accessibility to thought leaders in the rare disease community.
- Network, learn and benchmark from hundreds of industry counterparts, patient advocacy stakeholders, investors and FDA leadership to better align their thinking on complex issues
- Gain insight into the strategic models for commercializing an orphan product
- Learn strategies to stay ahead of the curve on the newest R&D advancements in rare diagnostics and treatment regimens