Rare Disease Day 2015
Saturday, February 28th, 2015
Rare Disease Day is February 28, 2015. The National Organization for Rare Disorders (NORD) is sponsoring this day of awareness throughout the United States. EUORDIS (The European Organization for Rare Disorders is sponsoring this day of increased rare diseases awareness throughout Europe, as are many other countries around the world.
Checkk the Rare Disease Day website at NORD http://www.rarediseases.org/ for more information about the events in your area.
NORD is working with rare disease organization leaders to provide events at the State Capitol with legislators in 30 states.
The Tarlov Cyst Disease Foundation Executive Director is the State Leader for the State of TN Capitol Event, February 23, 2015.