THE TARLOV CYST DISEASE FOUNDATION
Hope, Support, & Progress for Tarlov Cyst Disease
NEWLY DIAGNOSED?
LOOKING FOR TREATMENT?
ARE YOU A PROVIDER?
What Is Tarlov Cyst Disease?
Tarlov Cyst Disease occurs when fluid-filled sacs form along the spinal nerve roots. While some remain symptom-free, others can expand and compress nerves, leading to chronic pain, neurological symptoms, & reduced quality of life.
About The Foundation
The Tarlov Cyst Disease Foundation is a dedicated non-profit advancing understanding, improving diagnosis, and advocating for better treatments for symptomatic Tarlov cysts; empowering patients, families, and providers worldwide.
Why Your Support Matters
Fuel research for better diagnosis & treatments
Educate clinicians & reduce misdiagnosis
Provide patients & families with life-changing resources
Advocate for recognition & improved care
In Honor of Reta Honey Hiers
Reta Honey Hiers, founder of the Tarlov Cyst Disease Foundation, spent decades advancing awareness, education, and patient advocacy after her own diagnosis. Her leadership helped secure formal recognition of Tarlov Cyst Disease within medical coding and brought hope to countless patients worldwide.
