Help us to help those living with Tarlov/perineural cysts by your donation to our efforts in advocacy, research and education. Donate and/or join the Foundation as a member to support our efforts to make a difference for patients all around the world who are diagnosed with the life altering diagnosis of Tarlov/perineural cysts.

Donate / Join Today!

The Tarlov Cyst Disease Foundation Board of Directors wish to thank you for supporting our efforts to provide hope for those diagnosed with Tarlov/perineural cysts. We are aware of the changes in the lives of Tarlov cyst patients and we are committed to making a difference.

We ask you to join us in our efforts and assist the Tarlov Cyst Disease Foundation…… by making a tax-deductible donation, becoming a member of the Foundation and/or renewing your membership for the next year. Ask friends and family to make a donation in your honor as a special gift, or to donate in memory of, or in honor of a loved one this year. Complete the Membership & Donation form to donate online or mail a check to the Foundation Treasurer.

With your support, we can continue to provide advocacy for Tarlov cyst patients around the world, fund research, and improve education about Tarlov cyst disease.

Be a part of Tarlov Cyst Research NOW!

Please participate in the Patient Survey!

Take The Survey

This Foundation is dedicated to the mission of finding the best possible solutions that will resolve the life-altering problems caused by symptomatic Tarlov cysts (perineural cysts,sacral nerve root cysts).

The Tarlov Cyst Disease Foundation is an advocate for patients and promotes research and education about Tarlov cysts. The website provides information about symptomatic Tarlov cysts, which may cause such symptoms as sciatica, difficulty sitting or standing for more than short periods of time, coccyx (tailbone) pain, pain in buttocks and legs, leg cramps, paresthesias (strange sensations in legs and feet), bladder and bowel dysfunction,chronic pelvic, abdominal, and genitalia pain. If the cysts are located higher in the cervical,thoracic, or lumbar sections of the spine, the symptoms can cause pain and paresthesias in the neck, shoulders,chest, arms, legs, and lower back.

Please consider joining us as a member, renewing your annual membership and/or making a tax-deductible donation to the Tarlov Cyst Disease Foundation to help support the Foundation’s efforts. We need your help in the important work of providing hope to Tarlov cyst patients, and in support of our continued mission to promote & fund research and improve education about Tarlov cysts. The importance of your support cannot be emphasized enough! Please help us to continue research and education by asking friends, family, co-workers, and others to make a tax-deductible donation today or to make one yourself on the: Donate/Join Us page . You can donate online via credit card or mail a check to the Foundation’s Treasurer (name and mailing address provided on the Membership & Donation form.) Please complete the form and mail it with your check,so that we can properly acknowledge your membership and/or donation. THANK YOU!

Contact Us

Please use the Contact us form for initial contact in order to provide important information for contacting you – your name, phone number and geographic location. An email or phone call response will be provided as soon as possible.

We look forward to speaking with you to respond to your questions and to sharing more information with you about Tarlov/perineural cysts.

Contact Us

The Tarlov Cyst Disease Foundation’s web site, its databases, newsletters, and the contents thereof are copyrighted by the Foundation. No part of the Foundation’s web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of the Tarlov Cyst Disease Foundation’s Board of Directors. Permission is hereby granted to print one hard copy of a page of information for your personal use, provided that such content is in no way modified, and that credit for the source (Tarlov Cyst Disease Foundation) and this copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.