WELCOME TO THE TARLOV CYST DISEASE FOUNDATION WEBSITE!

 

The Tarlov Cyst Disease Foundation Board of Directors wish to thank you for supporting our efforts to provide hope for those diagnosed with Tarlov/perineural cysts. We are aware of the changes in the lives of Tarlov cyst patients and we are committed to making a difference.

This Foundation is dedicated to the mission of finding the best possible solutions that will resolve the life-altering problems caused by symptomatic Tarlov cysts (perineural cysts,sacral nerve root cysts).

The Tarlov Cyst Disease Foundation is an advocate for patients and promotes research and education about Tarlov cysts. The website provides information about symptomatic Tarlov cysts, which may cause such symptoms as sciatica, difficulty sitting or standing for more than short periods of time, coccyx (tailbone) pain, pain in buttocks and legs, leg cramps, paresthesias (strange sensations in legs and feet), bladder and bowel dysfunction,chronic pelvic, abdominal, and genitalia pain. If the cysts are located higher in the cervical,thoracic, or lumbar sections of the spine, the symptoms can cause pain and paresthesias in the neck, shoulders,chest, arms, legs, and lower back.

The Tarlov Cyst Disease Foundation’s web site, its databases, newsletters, and the contents thereof are copyrighted by the Foundation. No part of the Foundation’s web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of the Tarlov Cyst Disease Foundation’s Board of Directors. Permission is hereby granted to print one hard copy of a page of information for your personal use, provided that such content is in no way modified, and that credit for the source (Tarlov Cyst Disease Foundation) and this copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.