Welcome to the Tarlov Cyst Disease Foundation Website!
Be a part of Tarlov Cyst Research NOW!
Please participate in the Patient Survey on the "Surveys & Research" page. The Foundation is providing compiled data from the surveys to the Tarlov cyst researchers to whom funding has been provided.
This Foundation is dedicated to the mission of finding the best possible solutions that will resolve the life-altering problems caused by symptomatic Tarlov cysts (perineural cysts,sacral nerve root cysts).
The Tarlov Cyst Disease Foundation is an advocate for patients and promotes research and education about Tarlov cysts. The website provides information about symptomatic Tarlov cysts, which may cause such symptoms as sciatica, difficulty sitting or standing for more than short periods of time, coccyx (tailbone) pain, pain in buttocks and legs, leg cramps, paresthesias (strange sensations in legs and feet), bladder and bowel dysfunction,chronic pelvic, abdominal, and genitalia pain. If the cysts are located higher in the cervical,thoracic, or lumbar sections of the spine, the symptoms can cause pain and paresthesias in the neck, shoulders,chest, arms, legs, and lower back.
If you, or a member of your family, friend or a patient has been diagnosed with Tarlov cyst(s), we believe that you will gain beneficial information and hope from your visit to this site. We also hope that you will share with us, what you have already learned, in order to benefit the research and education the Foundation is providing. The composite of our shared information leads to improved communication, understanding and proof that you are not alone in the struggle to find assistance and support. Our combined efforts will provide present and future benefits. Research and education are the keys!
The Foundation's achievement of specific purposes and objectives will provide hopeful solutions for the future. We will work tirelessly to bridge the gap of missing knowledge until that mission is accomplished.
Sincerely,
Tarlov Cyst Disease Foundation Board of Directors
Please consider joining us as a member, renewing your annual membership and/or making a tax-deductible donation to the Tarlov Cyst Disease Foundation to help support the Foundation’s efforts. We need your help in the important work of providing hope to Tarlov cyst patients, and in support of our continued mission to promote & fund research and improve education about Tarlov cysts. The importance of your support cannot be emphasized enough! Please help us to continue research and education by asking friends, family, co-workers, and others to make a tax-deductible donation today or to make one yourself on the: Donate/Join Us page . You can donate online via credit card or mail a check to the Foundation's Treasurer (name and mailing address provided on the Membership & Donation form.) Please complete the form and mail it with your check,so that we can properly acknowledge your membership and/or donation. THANK YOU!
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To Contact Us
Click on the Contact Us Link
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The Tarlov Cyst Disease Foundation’s web site, its databases, newsletters, and the contents thereof are copyrighted by the Foundation. No part of the Foundation’s web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of the Tarlov Cyst Disease Foundation’s Board of Directors. Permission is hereby granted to print one hard copy of the information for your personal use, provided that such content is in no way modified, and that credit for the source (Tarlov Cyst Disease Foundation) and this copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
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